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January 10, 2009 I got a phone call that James was in the nurse's office with the flu. The next phone call I received was from the Sheriff's department, “I am sorry to inform you that your son has passed away.” I can’t begin to describe the anguish our family felt at that moment. After several months, the medical examiner could not determine the cause of death and our pediatric endocrinologist insisted it had nothing to do with his diagnosis of congenital adrenal hyperplasia. In my search for answers I found the CARES Foundation and I found answers. CARES had information that my Doctor wasn’t even aware of. We hired our own medical examiner and found that James had died of an endocrine crisis brought on by the flu. Since that time I have joined the CARES Community as a Southern California Support Group Leader.
CARES Foundation leads in the effort to improve the lives of the Congenital Adrenal Hyperplasia community and seeks to advance quality health care through support, advocacy, education and research.
The Foundation reaches out to families and individuals with Congenital Adrenal Hyperplasia (CAH), an orphan condition that is historically underserved, supported and funded. We also strive to increase the awareness of CAH within the healthcare community. Sue has been the Southern California Support Group Leader for CARES Foundation since November, 2009.